Please add your input! What if I…….

Good morning to everyone out there! I have just downloaded and am eagerly digging into Duncan Capicchiano’s website and e-offerings. You can find information about Duncan here:

About Us

I purchased his material last night. What he offers is truly impressive. He goes above and beyond what these usual money-making gurus do. I see nothing scammy about this product. He includes some goodies added in as extras. Some of the extras contain borrowed material which he credits to these authors and other naturopaths who contributed recipes and the like. What he also includes is a full, CD-length audio “pep talk.” This is not at all like your typical condescending pep talk written by a therapist. (Compare, say, to Marsha Linehan’s book, which is nothing but demeaning bullshit!)

I am noticing something amazing. All the naturopaths, or the ones that I have found that seem genuine and actually speak to you or somehow don’t seem scammy, all of them seem to have a few things in common.

Almost all recommend similar dietary changes. Now we may argue that there’s an insane amount of conflicting info out there. This is true, but we need to peel away the scams, the money-makers, the power-seekers, and those that just want to sell their stuff. Now once we have done this, take a look at the few (very few!) that remain.

(Note: if you are concerned about the number of scammy health gurus out there compared to genuine ones…then think of all the licensed MD’s out there who don’t know what they are doing or cause harm….Ratio’s about the same, right?)

Back to naturopaths. Now if we take all the honest ones and look at their messages, they do all say similar things. Each has a way of saying it differently, communicating that message in a way that speaks to some, but others may not find the naturopath’s message useful.

If what they say is true, then shouldn’t it speak to everyone? Not necessarily. It will ring true for you if communicated in a way that you can understand, that you appreciate, that strikes a chord, that educates…and all this has to do with the how of the message. The medium. The genre. Given that humans come from different cultural backgrounds, I can’t imagine we all soak up info exactly the same way.

I listened to the entire CD, which is not on kidney disease but on health in general, and am right now looking over the written material.

Capicchiano is spot on in every way. Almost. I see him waver here and there in his claims. I plan to tell him so because these minor details can be edited out of his material, or changed.

I believe that for the average kidney disease sufferer, especially if your GFR has dropped below 60, his material will be so helpful that you will not regret the purchase.

I do not see anything about lithium in there. I know as a fact that for those of us who took lithium, the protocol to survive and thrive after lithium-related kidney and thyroid damage is not the same as that which the average CKD sufferer might follow.

Capicchiano’s book is designed for the average CKD sufferer and likely is not totally relevant to most of us who took lithium. The material is immensely helpful and worthwhile, but it does not cover lithium-specific issues. Similar to other naturopaths, he recommends steering away from pharmaceuticals and staying healthy instead.

In fact, going to a kidney doctor for lithium-related damage quite likely will harm you or kill you. Some of the advice these doctors give is actually the exact opposite of what lithium survivors need to do to stay alive.

For instance, the typical kidney doctor will tell a patient to limit fluids drastically, even to limit to a pint of water a day. This will very quickly dehydrate a person who has the common lithium-related kidney consequence called diabetes insipidus (DI). In fact, adhering to water restriction and dehydrating yourself will further damage your kidneys, and could put you into renal failure.

Another example is potassium restriction, recommended to those with severe renal damage. I am finding this is not true at all. I lose potassium and even carry potassium supplements around with me when I go out on long trips (as PRN’s!!!).

What about protein? What about fat? What about caffeine and sugar? Can I eat legumes?

I do not think there’s any material out there to guide us. Lithium-damaged patients are dying because they lack information.

What if I published a short booklet on how to survive lithium? Do you guys honestly think there is a need for such a book? I don’t believe I need credentials beyond the very fact that I am alive, happy, vibrant, energetic, employed, feel a sense of purpose, have decent relationships, am strong and fit. And my GFR is 18.

At a GFR of 18 a person likely couldn’t even write this much, couldn’t concentrate, couldn’t sit this long, couldn’t do the research I regularly do, and likely couldn’t take care of daily needs either. Most people who have that low kidney functioning can’t walk or can barely walk. They are tired, so tired of being sick that some beg for dialysis. Not me!

If I did this, should I publish what I have taught myself, it would be groundbreaking material.  I could save people’s lives this way.

I have so often told myself if I could share just a little of what I have learned, give it away, or somehow impart it to others, maybe a few will catch on.  What do you think?

Of course, as anyone who writes about health does, I would add that little disclaimer that you are in charge of your health, that it is YOUR CHOICE to pick and choose from all the health material you can access, and you choose how to act upon that information. You choose to use what is relevant and discard what doesn’t work for you. As always.

 

Article by Phil Hickey regarding newer neuroleptic use…and my commentary

Here’s the link to the article in Mad in America by Phil Hickey:

Second Generation Neuroleptics and Acute Kidney Injury in Older Adults

Here’s my comment, as it is now, up on the site:

More fuel for the argument, Phil! Thank you!

I entered the tween stage, that is, 55-65, when we get to be halfway elderly and occasionally can take advantage of “senior discounts,” with a bang. I decided to use a slogan to describe my age: “55 and Alive!” Some seven months later, I experienced acute kidney failure. I am lucky to be alive today.

The psychiatric profession appears to be desperate to deceive patients and keep them in the dark about consequences, even if it means hiding important information regarding medical conditions from patients so that they will continue to comply. For years, my kidneys were running low, and I wasn’t told. When I arrived at an ER and I went into full code last August, a nurse blurted out to me that I was in kidney failure. I believe they hoped I wouldn’t recall this blunder. However, for whatever reason, I remember well. My electrolytes were so off at that point that it didn’t even register in my mind that I was near death. I was merely curious as to what would occur next. For over a month I’d been feeling like I was on a moving ship, or was the world just tilting back and forth the whole time?

I was up on the floor and I asked flat out what had happened. I repeated what I’d heard and they said, accusingly, “Who told you that?” as if it were a lie or my imagination. I was in the hospital 11 days. Every day, each morning, i was offered Abilify and I refused it. The doctor in charge finally told me if I didn’t take Zyrexa, he wouldn’t allow me to leave the hospital even if I was medically stable enough to leave. He’d pushed many antipsychotics on me, including Haldol, and i’d refused all of them. Their main goal, as far as I know, was to transfer me to a psych ward where I’d be started on the deconate, and court ordered to stay on it. I’m sure, had I refused, I would have been transferred to a state facility.

I told the doctor that I didn’t think Zyprexa was an appropriate medication for a person with anorexia nervosa. It had already been proven to be unhelpful for anorexia, and it’s not approved, either, as off-label use. I’d taken it before with disastrous results.

I learned that I’d gone into renal failure because the the day I went home free the discharge doc accidentally gave me papers I shouldn’t have had access to. I was alone late on Friday night when I found out I’d nearly died, and they never bothered to tell me.

I have a new slogan, “56 and Free.” I am lucky to be alive. My kidneys are roughly at 1/3 functioning. I know now that they were desperate to keep me from writing or speaking out about what happened.

Sorry, docs. I am a writer and my weapon is my pen. They were desperate to stop me even if they had to tell huge lies. You can stab yourself with a pen. But why do that, when you can put it to far more powerful use?

I love ya’ll, Julie Greene and her little dog, Puzzle