Article by Phil Hickey regarding newer neuroleptic use…and my commentary

Here’s the link to the article in Mad in America by Phil Hickey:

Second Generation Neuroleptics and Acute Kidney Injury in Older Adults

Here’s my comment, as it is now, up on the site:

More fuel for the argument, Phil! Thank you!

I entered the tween stage, that is, 55-65, when we get to be halfway elderly and occasionally can take advantage of “senior discounts,” with a bang. I decided to use a slogan to describe my age: “55 and Alive!” Some seven months later, I experienced acute kidney failure. I am lucky to be alive today.

The psychiatric profession appears to be desperate to deceive patients and keep them in the dark about consequences, even if it means hiding important information regarding medical conditions from patients so that they will continue to comply. For years, my kidneys were running low, and I wasn’t told. When I arrived at an ER and I went into full code last August, a nurse blurted out to me that I was in kidney failure. I believe they hoped I wouldn’t recall this blunder. However, for whatever reason, I remember well. My electrolytes were so off at that point that it didn’t even register in my mind that I was near death. I was merely curious as to what would occur next. For over a month I’d been feeling like I was on a moving ship, or was the world just tilting back and forth the whole time?

I was up on the floor and I asked flat out what had happened. I repeated what I’d heard and they said, accusingly, “Who told you that?” as if it were a lie or my imagination. I was in the hospital 11 days. Every day, each morning, i was offered Abilify and I refused it. The doctor in charge finally told me if I didn’t take Zyrexa, he wouldn’t allow me to leave the hospital even if I was medically stable enough to leave. He’d pushed many antipsychotics on me, including Haldol, and i’d refused all of them. Their main goal, as far as I know, was to transfer me to a psych ward where I’d be started on the deconate, and court ordered to stay on it. I’m sure, had I refused, I would have been transferred to a state facility.

I told the doctor that I didn’t think Zyprexa was an appropriate medication for a person with anorexia nervosa. It had already been proven to be unhelpful for anorexia, and it’s not approved, either, as off-label use. I’d taken it before with disastrous results.

I learned that I’d gone into renal failure because the the day I went home free the discharge doc accidentally gave me papers I shouldn’t have had access to. I was alone late on Friday night when I found out I’d nearly died, and they never bothered to tell me.

I have a new slogan, “56 and Free.” I am lucky to be alive. My kidneys are roughly at 1/3 functioning. I know now that they were desperate to keep me from writing or speaking out about what happened.

Sorry, docs. I am a writer and my weapon is my pen. They were desperate to stop me even if they had to tell huge lies. You can stab yourself with a pen. But why do that, when you can put it to far more powerful use?

I love ya’ll, Julie Greene and her little dog, Puzzle

What the truth is…lies and coverup and forced drugging

I’m not sure…but I feel that I am being forced to take this medication…told that I have to take it and that I have no choice….Told that if I don’t, I am screwed, basically.

Well, I took one of those pills last night, and slept only two hours.  Dr. P kept telling me these pills will make me feel oh so much better, however, I feel like crap, as you can imagine.  I feel like the waking dead, kinda like, as I have told Dr. P in the past, someone is holding toothpicks (as they used to show in the cartoons) in my eyelids to keep my eyes open, to keep me awake. When I am on this Abilify I am unable to sleep even in a state of complete exhaustion.  The higher the dose, the worse it gets.  I took only 5 mgs last night.  Jeepers, that was only one pill.  I can’t stay on this, and I can’t “disobey” Dr. P. This is forced drugging.  I can’t ask her to switch me to a different antispsychotic because then she will put me on fucking Seroquel or some other “weight-gainer,” something nightmarish to me.  No one with an eating disorder in their current or past should ever be forced onto medication that puts weight on them.  Or some med that gives me Tardive Dyskinesia.

So that’s happening.  Forced onto meds the are fucking up my sleep.

The hospital gave me, I guess what you would call, in plain English, BAD CARE in 2011, and they are lying about it and covering it up, denying that it ever happened.

The whole time that I was there, I had no visitors.  You know something?  I almost died then, having starved myself, making myself thin.   The irony was killing me.  I was all alone, lying in that bed, being glared at by those “sitters” with no witnesses.  My roommate was dying of cancer, and every day her Loving Family came to see her, they surrounded her with hugs and cards and stuff.  They showed up and stayed into the night, and there were so many doctors and specialists in to see her, pain specialists and the like.

Oh yeah, my therapist came, which I thought was “great,” but I did not realize then that she was discussing this “state hospital” plan with the hospital staff behind my back.  It was revealed to me a couple of months later, told that it had been in the works.  So she would come see me.  She was trying to get me institutionalized.

So I left, traumatized, I ended up there twice, the second time not as bad but still bad enough, and still no one believing me, and finally suffering with trauma I had to go to another hospital to be treated for trauma because of the trauma I had experienced from the Bad Care.

At hospital #2, they believed me, I told them how bad it was.  They believed what I said.  I told them about the peepholes and everything.  And the guy that kept taking off his clothes.  You know there are guys like that at psych units.  You gotta laugh…or you will cry.  They kept telling him he needed to put his freaking clothes back on.  I suppose if you’ve been around as long as I have, you will end up seeing a guy take his clothes off at least once or twice.

So….

Folks, I am not the only one who was either threatened “state hospital” or sent there.  There have been other patients.  I have witnessed this and heard stories and the hospital staff tried to shut up the patient who was telling the story to me last July!

So now…

I have told you Mass  General stated they gave me bad care in July-August 2011.  As it unfolded.

They refused to give me a therapist based on “insurance” this past spring.  And I wrote this here in my blog.  Dr. P says it’s a bad thing for me to write this?  It’s a bad thing to say how sad it is that people can’t get care in the big rich USA?  Here in Boston, the Medical Hub of the Universe?  It’s not okay to say it out loud?

Do you understand that insurance can dictate life and death in our country?  Do you understand how badly that sucks?

Dr. P says the Five Fundamental Rights are trivial.  Not important.  And she even said at one point that they did not exist?  Folks, it’s incredible that our state even has Patient Rights.  At other states, patients die because they don’t have the same laws we have here in Massachusetts.  So right now, they are talking about a Sixth Right.  If I didn’t have my eating disorder, I’d probably be following all this more, and getting more active in this stuff.  But I keep swearing up and down and promising and crossing my fingers about changing the world.  And I guess in a big way,  that phone booth up there at Alcott is proof that NEVER, EVER SHUTTING UP can indeed change things.

So folks, keep on talking. Keep writing.  Don’t stop.  Tell your stories.  Write down what happened to you.  Remember all the bullshit and write it.  Yes, all the Bad Care.  All the times they put you in restraints illegally, all the times they yanked you around as if you were a dog on a choke collar, cuz you know it happened.  All the times you were thrown into empty rooms, all the times you were stripped down and your stuff was taken from you, your valuables lost and never returned to you, please, tell everything.  Why?  Because there is no reason not to.

I am being denied care because they are afraid of my writing.  Yep.  They are scared.  They lied to Dr. P.  What they told her was not true.  Of course, she herself was not involved in my inpatient treatment while I was there anyway.  Is any of this legal?

Jeez…forced….