Please add your input! What if I…….

Good morning to everyone out there! I have just downloaded and am eagerly digging into Duncan Capicchiano’s website and e-offerings. You can find information about Duncan here:

About Us

I purchased his material last night. What he offers is truly impressive. He goes above and beyond what these usual money-making gurus do. I see nothing scammy about this product. He includes some goodies added in as extras. Some of the extras contain borrowed material which he credits to these authors and other naturopaths who contributed recipes and the like. What he also includes is a full, CD-length audio “pep talk.” This is not at all like your typical condescending pep talk written by a therapist. (Compare, say, to Marsha Linehan’s book, which is nothing but demeaning bullshit!)

I am noticing something amazing. All the naturopaths, or the ones that I have found that seem genuine and actually speak to you or somehow don’t seem scammy, all of them seem to have a few things in common.

Almost all recommend similar dietary changes. Now we may argue that there’s an insane amount of conflicting info out there. This is true, but we need to peel away the scams, the money-makers, the power-seekers, and those that just want to sell their stuff. Now once we have done this, take a look at the few (very few!) that remain.

(Note: if you are concerned about the number of scammy health gurus out there compared to genuine ones…then think of all the licensed MD’s out there who don’t know what they are doing or cause harm….Ratio’s about the same, right?)

Back to naturopaths. Now if we take all the honest ones and look at their messages, they do all say similar things. Each has a way of saying it differently, communicating that message in a way that speaks to some, but others may not find the naturopath’s message useful.

If what they say is true, then shouldn’t it speak to everyone? Not necessarily. It will ring true for you if communicated in a way that you can understand, that you appreciate, that strikes a chord, that educates…and all this has to do with the how of the message. The medium. The genre. Given that humans come from different cultural backgrounds, I can’t imagine we all soak up info exactly the same way.

I listened to the entire CD, which is not on kidney disease but on health in general, and am right now looking over the written material.

Capicchiano is spot on in every way. Almost. I see him waver here and there in his claims. I plan to tell him so because these minor details can be edited out of his material, or changed.

I believe that for the average kidney disease sufferer, especially if your GFR has dropped below 60, his material will be so helpful that you will not regret the purchase.

I do not see anything about lithium in there. I know as a fact that for those of us who took lithium, the protocol to survive and thrive after lithium-related kidney and thyroid damage is not the same as that which the average CKD sufferer might follow.

Capicchiano’s book is designed for the average CKD sufferer and likely is not totally relevant to most of us who took lithium. The material is immensely helpful and worthwhile, but it does not cover lithium-specific issues. Similar to other naturopaths, he recommends steering away from pharmaceuticals and staying healthy instead.

In fact, going to a kidney doctor for lithium-related damage quite likely will harm you or kill you. Some of the advice these doctors give is actually the exact opposite of what lithium survivors need to do to stay alive.

For instance, the typical kidney doctor will tell a patient to limit fluids drastically, even to limit to a pint of water a day. This will very quickly dehydrate a person who has the common lithium-related kidney consequence called diabetes insipidus (DI). In fact, adhering to water restriction and dehydrating yourself will further damage your kidneys, and could put you into renal failure.

Another example is potassium restriction, recommended to those with severe renal damage. I am finding this is not true at all. I lose potassium and even carry potassium supplements around with me when I go out on long trips (as PRN’s!!!).

What about protein? What about fat? What about caffeine and sugar? Can I eat legumes?

I do not think there’s any material out there to guide us. Lithium-damaged patients are dying because they lack information.

What if I published a short booklet on how to survive lithium? Do you guys honestly think there is a need for such a book? I don’t believe I need credentials beyond the very fact that I am alive, happy, vibrant, energetic, employed, feel a sense of purpose, have decent relationships, am strong and fit. And my GFR is 18.

At a GFR of 18 a person likely couldn’t even write this much, couldn’t concentrate, couldn’t sit this long, couldn’t do the research I regularly do, and likely couldn’t take care of daily needs either. Most people who have that low kidney functioning can’t walk or can barely walk. They are tired, so tired of being sick that some beg for dialysis. Not me!

If I did this, should I publish what I have taught myself, it would be groundbreaking material.  I could save people’s lives this way.

I have so often told myself if I could share just a little of what I have learned, give it away, or somehow impart it to others, maybe a few will catch on.  What do you think?

Of course, as anyone who writes about health does, I would add that little disclaimer that you are in charge of your health, that it is YOUR CHOICE to pick and choose from all the health material you can access, and you choose how to act upon that information. You choose to use what is relevant and discard what doesn’t work for you. As always.

 

9 thoughts on “Please add your input! What if I…….”

  1. I’m sending a link of this to my BFFL. Her mom has kidney failure and is only allowed 8 oz of water a day.

    It makes no sense to me. Dialysis may play a factor since she’s on that.

    1. For those with ordinary kidney disease, yes, that is the normal protocol for dialysis. For those who took lithium, obviously they need to do both the dialysis and the dietary protocol totally differently. Looks like this guru in Australia is one of the #1 expert naturopaths, yet he makes no mention of lithium and its effects. Looks like they haven’t even heard of it!

      I am wondering if dialysis even takes into account the increased need for water with lithium survivors. People vary widely in this respect, however, whenever there is DI, the water protocol has to be adjusted. If your friend does not have DI, then she probably can get by on 8oz a day.

      This is why I suspect there’s no written material out there for lithium survivors. Nothing. And limited research, because let’s face it, we’re either dead or not worth the funding. Not to them.

        1. If her kidney failure is from something other than lithium then my book won’t be relevant. I think Duncan’s suggestions are spot-on. He can even help some people reduce need for dialysis. So they would be having it less frequently.

        2. I edited the last comment because the book I am writing is only for those who have kidney damage from lithium, sorry I wrote the wrong word.

    1. How much you drink is not evidence one way or another regarding how your kidneys are doing. I’m sure he knows that. But of course people are almost delusional when it comes to these magic pills. Safe and effective…….not.

      1. Warren claims the water prevents kidney damage.

        But he also went off his lithium 10 years ago. During this time he spent months at a time–1/3 to 1/2 of the decade–lolling in bed feeling sorry for himself and not answering calls though he knew it would scare his friends and family.

        Suddenly he decided lithium would cure his unhappiness. Lying in bed for weeks or months, eating nothing but pop and chips, not talking to anyone, doing nothing but dwelling on gloom…I can’t think why he was miserable living that way. Defective brain chemistry according to him.

        1. Hmmm….bad diet, no exercise, no social life even though his phone is ringing. I think people know they are “off meds” so they look for things to be miserable about. People have to change their attitudes and think of it as “med-free.” He may also have been in appointment withdrawal from learned dependency.

Feedback and comments welcome!