Psychiatry has long been aware that lithium causes diabetes insipidus in patients. This doesn’t take rocket science. This is easily accessible information and it doesn’t take a medical library, anyone can find this information in a simple Google search.
I am beside myself laughing, wondering why the EXPERT doctors and other medical personnel did not figure out that I had diabetes insipidus for 27 years. I did tell them that I drank a lot of water, and in fact, told them how much. Were they blind? Could they not count? Maybe they were the ones who needed new glasses! I am wondering why I didn’t stumble upon the information myself, but I didn’t. This was THEIR JOB, after all, or so I figured.
Wow, I was wrong. I should have known they were just plain clueless, they didn’t listen, they didn’t care, and they weren’t doing what they were doing “for my own good.” They were doing it for their own good. The whole time they claimed they knew what they were doing….Wow, I was so naive to trust them.
I managed to get into my MGH records. There I see “renal insufficiency” listed. Now that’s funny…I was not informed. Yet it was there. I went back and looked at old blood records. Back in 2011, my GFR was around 40. GFR means the percentage of kidney function. It’s supposed to be at least 90 in your 50’s, especially if you do not smoke or have diabetes. The lawyers had told me that the fact that I had not been informed of this is cause for a lawsuit, especially since my kidneys failed shortly after. The lawyers said had I been informed, I could have taken precautions. I was keeping appointments and showing up faithfully. They were not doing their part at all.
Well, yeah, I would have ditched MGH and psychiatry much sooner than I did.
MGH’s records do NOT list diabetes insipidus. Interesting, eh? I wonder what would happen if I amended my records and added that. Ha ha.
My psychiatrist’s claim that my sodium was “dangerously low” while I was on the medical floor in July 2011 was completely bogus. I checked all those levels. All are fine, totally in range. I have checked these before, and I also recall I was never informed of a “dangerously low” sodium level. I always knew her claim was bogus. The staff had already told me there was no medical reason for the water restriction, that it was “purely our policy to limit water.”
I also checked to see if my appointment list had been fudged. It hasn’t. I don’t think they could get away with altering it since Medicare was billed! So in August 2013 Dr. Pearson scrambled to excuse herself from all blame and wash her hands clean of my “case,” she lied to Dr. Bibek Kiorala over the phone, telling him I had not been to see her for “months.” She was trying to make it look like I’d been irresponsible, gone off meds, and hadn’t seen anyone at all. Brush it all aside!
Not true! I had seen her July 10 and terminated, telling her the name of my future PCP and telling her when I had seen her and my scheduled appointments. I then attended THREE therapy appointments, boom, boom, boom! and somehow, slipped right through Harvard Vanguard’s cracks.
With each, I left, telling myself, “Wow, these folks are so, so clueless.” I only wanted help, but clearly none was to be found where I was looking.
Moral: Have you ever fallen through the cracks? Don’t die falling. Don’t die seeking. The answer can’t be found in medicine. They aren’t experts on you. You are the expert.