I may have mentioned in here in the past that I have been getting the beginnings of Tardive Dyskinesia. It is very slight, just a bit of vibration in my tongue. I have reported it to Dr. P. We decided not to do anything about it, because it wasn’t getting any worse, and because it wasn’t bothersome, but I did worry that it would worsen in the future.
Well, it seems to have worsened slightly. The vibrations are more intense now and to stop my tongue from vibrating, I sometimes purse my lips. It is a strange habit. I think people can see the area under my jaw vibrating from the tongue movements, or perhaps my cheeks, but this might be a bit of self-consciousness on my part.
Here is an excellent You-Tube on the topic of Tardive Dyskinesia:
So, if you’ve viewed the You-Tube, you know I’ve got reason to be concerned.
TD is permanent and there is no known cure. Dr. P says it may be advantageous to stop taking the Thorazine, which is the medication that caused the TD. Stopping the drug may lessen what I am experiencing. However, Dr. P says that if I can’t adjust, and we have to restart it, the TD may be aggrevated more.
With the glaring exception of the fact that I have been starving myself, I have been stable. My meds seem to be right for me. I don’t like the idea of messing with them. Still, it may be time to start thinking of getting off Thorazine before this TD business gets worse.
Given that I have started this habit of pursing my lips, and also that I believe the tongue vibrations are visible, perhaps ever so slightly, outside my mouth, to others, these are indications that the warning signs have worsened.
I know it’s Sunday, but as soon as I finish writing this blog entry, I’m going to give Dr. P a call, and leave a message telling her I think it’s time to try to get off Thorazine. We could taper slowly. I’m going to do it.